Tuesday, August 24, 2010

Seizures or Tic?

Tell me what you all think of these video's of Bebo. I have brought it up to our family doctor but he seemed to think it was behavioral, I'm not so sure. I would think that after 6 months these behaviors would slow down and they are not.

**Let me add that the head movement is not in anyway related to what he is watching. Remember we have watched him do this for the last 6 months. Also in the bottom video the leg movement is involuntary.He does this when he is relaxing, watching TV and when he is trying to fall asleep at night. He does do it for a bit when he firsts falls asleep as well.**

Just a side note, Twink is letting me know that she tooted and that she has a stinking butt in the second video. :)

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Monday, August 16, 2010

Never Underestimate

Never underestimate someone/something based on what is on paper! So many people let their fear stand in the way of some really beautiful moments. They depend on experts to know what is best and to know it ALL!

Here is our daughter who we were told would NEVER speak! That very doctor that told us she would never talk made a statement (in a condescending tone) that spoke volumes to his personality. This is his statement to my husband and I, "And you adopted her knowing all of this?" I really wanted to scream at him what makes her less desirable than any other child? We wanted a child and she needed a family. She has medical needs that take lots of time and patience. We prayed and knew this was our child! He obviously only saw her as a medical case not a child who was loved dearly already.

Twink has made HUGE gains in a years time (she's been home now 32 months). Actually it has been the last 3-6 months where she has blossomed in her vocabulary.  In another year, I plan on sending a video to that doctor to show him just how well she is talking. I think they way he treated us was wrong and I plan on telling him.

Oh the first statement she makes is she wants to see the picture and then she wants to see *** (herself).

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Friday, August 13, 2010

Coming Up For Air

Wow, life has been rather busy around here! Yesterday was the last day of my ASL class. It was a five week class that met M-Th for two hours in the a.m. I must give a shout out to my wonderful daughter Jewel who made it possible for me to attend this class. Everyday for the last 5 weeks she was up at 7:30 helping to get the littles off to their summer programs. She knew how important this class was to our family and she really stepped up. Teens don't like to get up that early in the summer but she did it without complaints. Much love to to her!

Both Bebo and Twink have 6wks of a summer school program so they do not regress in the things they have come so far in. They have one more week left and then a couple weeks off before the school years starts back up. Dash and Spitfire both had 4wks of summer time fun at the local school. It was almost like a day camp. Dash attended a sheriffs camp and totally loved it. Jewel has had a friend pretty much live here for the summer. I call her our fourth daughter as she says with us four to five nights out of the week. Jewel attended field hockey camp for 4 wks and their season will be starting in two weeks.

We've had a few bites on our house but they have totally low balled us. They offered 50 G's less than what we were asking after we lowered the price. I'm content to stay here for the school year and maybe try again after the holidays. It's so stressful living limbo.

I've started two home based business (no I'm not doing photography!). I love them both and am doing very well with them. I'll tell you more about them in my next posts. I'll also update you more on Bebo and Twink. There has been some amazing stuff going on there!

Oh and I'm sorry there are no pictures but I have not taken any since I started my class! I know, bad mamma!

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