Tuesday, June 23, 2009

The Binder

This is Twinks medial binder. This is great for a child who has a complex medical condition and sees multiple doctors. This was once recommendation to to me so I am now passing it on to all of you. What I have done is collected all of Twinks medical reports (MRI's, MRA's, EKG, ECHO, EEG, etc.) and keep all her recorders in one place. I bring them with us to her medical appointments. I can not tell you what a great suggestion that was. When I brought this binder to our first appointment with our new pediatric neurologist he was impressed. He told me he recommends this to all of his patients parents but many do not take the time to actually do it. He said for me to actually show up and already have one was impressive.

It just makes it very convenient if we go to a new doctor and they don't have a report. I can just pull it out of our file and say here you go. Make a copy and return mine. The only thing I lack and still plan to call on is Twink ER visits. Other than that, we have test result and initial report for every doctor she has seen. I hope this has been as helpful to someone as it was to me.

10 comments:

  1. Great idea! I currently keep all of Elaine's stuff in a pocket type file. A binder would be so much more organized! Thank you so much for the tip.

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  2. Hi Cheri!
    Thanks for suggesting this! I will have to do it for Lucy.
    Question though...did you have to ask for copies of all that? We have not seen any of the actual results of Lucy's tests. They usually just call us on the phone and give us her results.....
    Hugs, Jill

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  3. That is a great idea! Thanks!
    I will definitely keep it in mind for when
    we bring our precious daughter home.

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  4. Wow. I'm impressed!!! I guess we are bit spoiled b/c all of S's are at one place and they can all look on a computer screen and see it all. I still though need to do this, just for us to have should we move, go on an extended trip, etc. I also need to order one of those bracelets. Would it be too much to ask if you posted that link again? I can't find that post where you shared it. Pretty please? ;)

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  5. FABULOUS idea! What a great momma you are!!!!

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  6. What a wonderful suggestion Cheri! Thanks for sharing :)

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  7. What a great idea! As parents we definitely are the ones that need to advocate for our children. Thanks for sharing! Also thanks for stopping by with well wishes for Dallin. I love the little pics also, it reminds me how quickly they grow and to enjoy the moment! Take care!

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