Thursday, July 17, 2008
Tonic-clonic seizure!!
That is what Twink had tonight. Of course she had a 102*5 temp but they (the docs) don't believe it is febrile. I knew some thing was not right with her and she started with the seizure soon after I noticed. I called 911 and the ambulance took both of us to the hospital. This seizure lasted longer than the last one. I think it was close to 2 hours. We are home and very tired. She has two appointments tomorrow, one with her ped. and the other with the neurologist. More than likely they will start her on medication. Please keep us in your prayers.
Can I Scream?!?!
Oh, please pray that Twink will be able to have her surgery next week! As you may have read, Spitfire had the hand, foot, mouth virus. Well guess who started with a fever today? Twink!! From what I've read it is the first symptom of the virus. I feel like I can't catch a break. I really want this surgery done and the hearing tests out of the way so we know what we are dealing with. She goes to the doctor for clearance tomorrow and I'm afraid that he'll say no way. Please pray that this is not the case. I promise to be better about updating when I hear some thing.
Wednesday, July 16, 2008
Tuesday, July 15, 2008
Still Here
First let me say Twink is doing great. She is fever free. Spitfire does have hand, foot mouth as of last Saturday. I'm praying Twink does not get it because she has her ears done next week. Not sure if they'd put her under if she had that virus.
Last week was extremely busy. We have been preparing our church for a potential pastor. All week I (and others) worked on the landscaping in front and near our main doors. It looks wonderful, if I do say so. While I was working in the front of the church on Tuesday, some teens broke into the church and did graffiti on our adult Sunday School room walls. At the time I was the only one there. The police think I may have scared them off. I'm must say I was a bit startled when we returned to the church later that evening for our board meeting and everyone started questioning if I had seen anything. So on top of doing the landscaping we had to scrape creamer off the tables and soak the rugs in order to breakdown the non-dairy creamer that they spread all around the room. They were super nice to moisten it so it was like dried on glue! We ended up painting the entire room and steam cleaning the carpets. I must say I was pretty sore from all the work we did.
I'd like to ask if everyone if they would pray that God's will be done and that this gentleman we interviewed will be our new pastor. His family is wonderful and I love his wife. They have three bio boys and adopted a little girl from the foster care system. Now comes the shocking part! I shared with the wife that Twink had an in utero stroke and she told me that her daughter had the same thing! I think my eyes teared up because I couldn't believe that I was talking to someone in person who is going threw the same thing we are! They seemed to really like our church and I'm praying that they will accept the position.
The older kids are doing summer enrichment through our schools for the next four weeks. Both kids will go to our church camp for a week but different weeks. My baby is going to teen camp! YIKES! I know they will have a ton of fun. This week is VBS also so they are keeping busy. Last night Spitfire fell asleep during the music at VBS. So that's whats going on around here! Hope your all doing well!
Last week was extremely busy. We have been preparing our church for a potential pastor. All week I (and others) worked on the landscaping in front and near our main doors. It looks wonderful, if I do say so. While I was working in the front of the church on Tuesday, some teens broke into the church and did graffiti on our adult Sunday School room walls. At the time I was the only one there. The police think I may have scared them off. I'm must say I was a bit startled when we returned to the church later that evening for our board meeting and everyone started questioning if I had seen anything. So on top of doing the landscaping we had to scrape creamer off the tables and soak the rugs in order to breakdown the non-dairy creamer that they spread all around the room. They were super nice to moisten it so it was like dried on glue! We ended up painting the entire room and steam cleaning the carpets. I must say I was pretty sore from all the work we did.
I'd like to ask if everyone if they would pray that God's will be done and that this gentleman we interviewed will be our new pastor. His family is wonderful and I love his wife. They have three bio boys and adopted a little girl from the foster care system. Now comes the shocking part! I shared with the wife that Twink had an in utero stroke and she told me that her daughter had the same thing! I think my eyes teared up because I couldn't believe that I was talking to someone in person who is going threw the same thing we are! They seemed to really like our church and I'm praying that they will accept the position.
The older kids are doing summer enrichment through our schools for the next four weeks. Both kids will go to our church camp for a week but different weeks. My baby is going to teen camp! YIKES! I know they will have a ton of fun. This week is VBS also so they are keeping busy. Last night Spitfire fell asleep during the music at VBS. So that's whats going on around here! Hope your all doing well!
Thursday, July 10, 2008
Sunday, July 6, 2008
Dealing With Fevers, Again!
Here we are with high fevers again! We were up all night because this mama could not sleep with the thought that Twink could have a seizure in the middle of the night and need me. Daddy didn't get much sleep either because he was getting medicine for her all night.
I put her to bed about 8:30pm full of Motrin and went and checked on her at 10:30pm. She was hot to the touch. So I took her out of her crib and she slept with me, or should I say laid on me awake most of the night & early morning. We were alternating the Tylenol and Motrin and neither were bringing her fever down under 100.5*F. At one point about an hour and a half after the Motrin Lia spiked up to 102.4*F. When her little body starts to shake (rigors in nursing terms) it makes this mama really nervous. I can't stand the thought of another seizure and losing everything that she has gained in the last two weeks. Right now we are just praying. I'm sure if she was going to have another seizure due to a fever she would have had it by now so we are just watching her closely. I do believe that she is cutting a two year molar (reason for last fevers) but I thought they usually ran low grade fevers with teething! I don't think she knows what low grade is! LOL I'll keep you all posted.
I put her to bed about 8:30pm full of Motrin and went and checked on her at 10:30pm. She was hot to the touch. So I took her out of her crib and she slept with me, or should I say laid on me awake most of the night & early morning. We were alternating the Tylenol and Motrin and neither were bringing her fever down under 100.5*F. At one point about an hour and a half after the Motrin Lia spiked up to 102.4*F. When her little body starts to shake (rigors in nursing terms) it makes this mama really nervous. I can't stand the thought of another seizure and losing everything that she has gained in the last two weeks. Right now we are just praying. I'm sure if she was going to have another seizure due to a fever she would have had it by now so we are just watching her closely. I do believe that she is cutting a two year molar (reason for last fevers) but I thought they usually ran low grade fevers with teething! I don't think she knows what low grade is! LOL I'll keep you all posted.
Wednesday, July 2, 2008
What A Week!
I must say that I am glad that last week is over! I don’t think I’ve been that busy since our trip to China. LOL Between doctor appointments, house hunting for our pastor to be, friends and family in town (sad to see them leave) we were some busy people.
I believe I’ve already updated you all on Twink’s appointments so there is no need to repeat myself. She is going in on the 22nd to have her ears drained and possibly have tubes put in. She will also have her sedated hearing test at that time. I’m thinking of asking to have the blood work drawn to see if she is at risk for more stokes while she is sedated. I’m praying this is the last time she’ll have to be sedated.
Twink only had one therapy last week and it gave her a much needed break. We have seen some huge break throughs with her this week. She is giving kisses when asked and also free will, she is stepping over things, she is using her right arm more and more to stabilize things, she is crawling with both arms, she is SPEAKING boo, uh-oh, ding-dong (ing-ong) and her favorite ga-ga. I’ve noticed a pattern also with her behavior. She gets very upset if we do not get her food or drink fast enough, during bath, and during changing time but that is up and down. Oh lets not forget if I tell her no and she REALLY wants it. I think we have had a really great week!
The Counts sister and brother both came from out of state with their families for a visit. We were lucky enough to spend two days with them. The kids had so much fun together and it’s always hard for my kids to say good bye to their cousins.
On Sunday we had Twink dedicated at church by our very special friend who moved to Florida last November. He was up officiating a wedding and agreed to do Twink’s dedication. He and his family are extremely special to us and we miss them immensely. We were lucky enough to have them over for dinner Sunday evening. Our children love to play together but hate to say good-bye as do we!
This week is much quieter other than I drove the kids down to our church camp for the day on Monday. It was a day filled with fun activities for the kids
I believe I’ve already updated you all on Twink’s appointments so there is no need to repeat myself. She is going in on the 22nd to have her ears drained and possibly have tubes put in. She will also have her sedated hearing test at that time. I’m thinking of asking to have the blood work drawn to see if she is at risk for more stokes while she is sedated. I’m praying this is the last time she’ll have to be sedated.
Twink only had one therapy last week and it gave her a much needed break. We have seen some huge break throughs with her this week. She is giving kisses when asked and also free will, she is stepping over things, she is using her right arm more and more to stabilize things, she is crawling with both arms, she is SPEAKING boo, uh-oh, ding-dong (ing-ong) and her favorite ga-ga. I’ve noticed a pattern also with her behavior. She gets very upset if we do not get her food or drink fast enough, during bath, and during changing time but that is up and down. Oh lets not forget if I tell her no and she REALLY wants it. I think we have had a really great week!
The Counts sister and brother both came from out of state with their families for a visit. We were lucky enough to spend two days with them. The kids had so much fun together and it’s always hard for my kids to say good bye to their cousins.
On Sunday we had Twink dedicated at church by our very special friend who moved to Florida last November. He was up officiating a wedding and agreed to do Twink’s dedication. He and his family are extremely special to us and we miss them immensely. We were lucky enough to have them over for dinner Sunday evening. Our children love to play together but hate to say good-bye as do we!
This week is much quieter other than I drove the kids down to our church camp for the day on Monday. It was a day filled with fun activities for the kids
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