How Far We've Come

**Video has been added at the end of the post! :) Thanks Carla L.!!

Two years ago we received word on the extent of Twinks "disability". It was shocking to say the least. We did not expect to hear cerebral palsy and we did not expect to hear that she would never be able to talk. We we not prepared for the possibility of Autism as well. We simply thought she had a brain cyst.

If you look at the first three pictures below you can see what we dealt with pretty much on a daily basis. A truly frustrated, withdrawn, grief stricken child. There were many happy times but Twink had these tantrums below multiple times a day. Remember this post? I can happily say Twink does not do this anymore. Well maybe on a much lower level. The blank look I was told was Autism. She did display a few signs of it. We did have her tested and she narrowly passed the test from what I was told just a couple of months ago. I was am convinced it was a mixture of her brain injury and post-institutional autism. Her developmental doctor wanted to retest her in the coming months. Which leads me to this post!

We saw Twinks developmental doctor last week and we blew her out of the water with how far she has come. Twinks speech is coming at us faster than we can keep up. Some of it is still unclear and she still babbles from time to time but this child will tell you what is on her mind! She has new phrases that she has picked up, let me share them with you.

- Noooooo
- Go away
- Wanna go in the car/outside/play
- Kids bothering me
- Leave me alone
- We going to church
- I go potty
- It hurts (she says this for EVERYTHING!!)
- She names everyone in the house by name
- Says thank-you until you say your welcome

There are so many more! Some really funny ones too but I just can not think of them off the top of my head. Everyone has noticed how much more she is talking. Her doctor did not even mention testing her again! Twink visits this doctor every three months so you can get a good idea how much she has progressed in three short months. In fact this whole school year has been amazing progress for her.

Our girl has over come so much! Remember back to when the doctor told us she would never talk was gut wrenching. I'd say it was the worst day of our life as parents but many of you know we've had worse days than that! It was a hard day though. To think that you will never hear your sweet childs voice is a hard pill to swallow. That very same night the Lord gave me a glimer of hope to hold onto. Twink said Mama that night! That very same night the doctor told me she would never talk.

After her very first seizure Twink lost every word that she gained as well as every new sound she made. Same thing happened with her second seizure to a little bit less degree. With every seizure I live with a little fear that she will be set back in her speech. I'd like to say that I'd be OK with it if she lost her speech capability but I've had a small glimpse at what she is capably of doing. I don't want to go backwards. She has fought so hard to get to where she is and we will keep fighting this fight with her. She is my inspiration!

Twink is the reason why we were open to a child with a hearing disability. She opened our eyes that communication comes in forms other than verbal. So while we fight to help her become verbal we fight another fight to help our son become fluent in American Sign Language. Who by the way started school yesterday! I'll post tomorrow about his first couple of days.

To those parents who have children with speech delay don't give up hope. It's a long road but as long as your willing to press on then you will see progress. Baby steps all the way! :)

I had a video to put up but I see that blogger no longer has the capability to place video's on your blog. What happened? Anyone know how I can put a video on?

The picture below is Twink dancing with her shadow!

Home

We are home.We were allowed to leave last night after all of Twinks test came back normal. Both her EEG and MRI showed no new significant changes. We are awaiting the results of her blood test to see if her medication levels are appropriate. They were taken once but she had already had her night time dose so she would give a false reading.

All of this started on Wednesday. Twink started acting really tired and not eating as well as she normally does. Thursday she did not eat her breakfast which usually means something is wrong. The child never skips a meal unless she is not feeling well. I checked her temp but it was normal so we sent her to school. I received a phone call around 1 or 1:30pm that Twink did not want to play on the playground that she came in and wanted to lay down. She ended up falling asleep until her bus came to pick her up about a 1/2 hr later. When she came home she fell asleep again until 5 and went to bed at 8pm without a fuss. She did not eat much of her dinner.

Friday we decided to keep her home even before I woke her up. When I went into wake her though she looked dusky and her eyes fluttered as she tried to wake. They were trying so hard to focus on me but were having such a hard time. Again she did not want to eat but I made sure she had a couple of bites which had her medication in it. She was asleep by 10am and slept for three hours. awake for awhile and took another short nap from 3:30 to 5pm. Seemed fine after that. She even had a slice of pizza for dinner.

Saturday morning same as the others, she did not want to eat. I ended up feeding her. She was not happy but I did it anyway. She fell asleep by 11am and slept till 2pm when she cried out. Something she never does. When she came down she cuddled for awhile dozing on and off. She seemed to be having a hard time waking up. When she would open her eyes it was as if she was trying to come out of anesthesia. She seemed to not be herself and was having a very hard time focusing on us. After about an hour of this we decided to take her to the hospital. She was not following us with her eyes so I thought she was going into a seizure or coming out of one.

I swear the ER doctors thought I drugged her. Once we arrived she freaked like she always does. She totally hates doctors. They asked if it was possible that she got into something. I tried to tell them that she is always like this when it comes to doctors and their offices. She showed no signs of infection and the only symptoms she had was loss of appetite and behavioral changes. They admitted her for observation and to run the tests. Did I tell you they put us in a room with video surveillance? ;) Maybe they thought I had Munchhausen.

So we are here at home with no new answers. They are pretty sure she had some seizures and a possible virus. As far as the EEG not picking up seizure activity, I don't know what to tell you. The last two did not pick any up either so we are not totally surprised. The first EEG she had done she had a seizure about a week later and the second was a week or so after a seizure. I was told by her neurologist that seizure activity can be so deep within the brain that it is not always picked up on an EEG. It is obvious she has epilepsy and needs medication. It would be nice to narrow down which medication would be best for her based on seizure activity.

She still is not eating very well. She looks much skinner to the eye. She sees her developmental doctor on Monday and we need to make an appointment with her neurologist. Sorry this is so long but I thought I'd catch you all up on what happened. I took the above pictures with my cell phone, sorry about the quality. Spitfire was so happy and worried about Twink she wanted to sleep with her last night! Are they not sweet!

Thank you for all your thoughts and prayers! They worked and we are forever greatful.

Sick Kiddo's

I know I've been around much these days but half of my crew has been sick. They all went to school on Monday but Spitfire came home from school that afternoon and you could just tell she did not feel well. One look at her eyes and I knew she was running a fever. Sure enough she was 102.2 and all she wanted to do was go to bed. Jewel complained her throat was hurting and she ran a temp of 100.5.

Our schools have been hit HARD with H1N1, strep and the stomach bug. The school nurses office should have had a revolving door from what I heard. The student parking lot at the high school looked like it does after school with just a few stray cars. Jewel is back at school today and Spitfire is still out and probably will be tomorrow as well. She is still running a fever.

She was just sick a couple of weeks ago with fevers as well as was Twink. Many of you know how nervous we become when Twink has a fever. We were very blessed the last time as she did not have an seizures with her high temps. Normally that would have sent her into one. It seems the medication is working. We are praying that this flu season is easy on her little body and the rest of the children. No more sickness!

Hope the rest of you are staying healthy!

A Different Seizure

It is believed Twink had an Atypical Absence Seizure on Sunday at church. Totally different than her previous seizures. The Count was holding her during praise & worship and noticed she had a glazed expression on her face and her mouth was moving in a odd manor. It did not last long but a few minutes later it happened again and I was able to catch her in the action. If you've ever witnessed a child have a seizure you can tell there is something up after they are done. She was just not herself. Very dazed and glazed over for about thirty minutes. Praise God that it was short lived and did not turn into a Tonic Clonic!

We called her neurologists office yesterday (her neuro is on a sabbatical in Korea) and talked to the nurse practitioner. I was put on hold and only waited maybe a minute! I explained what had happened and she confirmed that indeed it sounded like a seizure. Twink had routine labs drawn on Friday to see if her medication is within normal limits. As it turns out she is in the normal limits BUT was a 4.9. They like to have the levels between 4-12 so as you can see she has room to go up. She asked me if I was OK increasing her medication. Umm, I'll do anything to not have a repeat of this. I remember her neurologist telling me he wanted her at 5 so I am more than OK with the increase. It was last year we dealt with this and we've been so blessed that the medication has helped so far.

To be perfectly honest when our agency told us Lia had the potential for seizures we were OK with it. I knew about seizures from being a nurse but as a mom I did not do any further research. I really wish we had. I wish we had been more prepared, learned more about the resources for families and to talk to our older children about seizures. To watch your sibling have a seizure can be scary. Our Noah to this day gets nervous when Twink has a fever (not to mention the rest of us).

If you wish to learn more about seizures you can visit Epilepsy.com

Doctor Updates

I love this picture of Jewel and Twink. Jewel was working with Twink on trying to get her to use both feet and both hands. Trying to do both is very hard for Twink. Twink does work at it for a few minutes before trying to do it her way though.

Twink saw her developmental doctor on Monday. We have decided we are going to do Constraint Induced Therapy and Botox Injection to help relax her thumb joint and elbow joint. If you notice in most of her pictures her right arm is usually bent and held tight to her body. She also fists her hand which tucks her thumb in between her pointer finger and her middle finger. Over time these joints can become contracted if not worked properly. So we hope that these procedures will actually give her some more use of her her right arm and hand.

While at the appointmant we saw a PT. I mentioned I was concerned about Twink's right foot. She sometimes drags it but will also turn it out to clear it out from tripping. Because she has only been walking for about 10 months we decided we would give her a couple more months to see if her ankle would get stronger before we needed to fit her for a brace. She very well may need an AFO. We will work on some intense therapy for the next couple of months to see if that helps.

We also received a referral (SHOCKING - we never leave without a referral to another doctors office) to another neurologist about an 1 1/2 hours from here. I told our dev. doc about the seizure meds. that the neuro doc wanted to put her on and her eyes bugged out. She said that they hardly ever use that medication anymore. I told her that I really would like to have a second opinion so she said she had a great doctor and would set us up with him. I feel great about it because it's actually at a seizure clinic!

Otherwise Twink is doing great! She is really coming along and I see her tantrums becoming less and less. Well at least they are not lasting as long. Her and spitfire are just too cute together! I love watching the two of them play together!

Results of EEG

Well it was normal! Can you believe that, normal. The neurologist did say that seizure activity can take place deep within the brain and not be picked up on an EEG. He did want to put her on a medication called Dilantin but it required blood draws every 6-8 weeks so I requested a different drug. I told him that she has already been through so much that if there was something else we could use I would rather try that. I also told him that it took my husband and I to hold her down for the EEG. I can't imagine doing that every 6-8 weeks. He told me the only other med we could use was phenobarbital which is just as bad and would also require the blood draws. He did tell me because she has only had two (but lengthy) seizures he would let us try rectal Valium at the on set of her next seizure. If that does not stop the seizure then we would then have to start medication. :(

So the good news is we did not start any permanent medication yet. The bad news is we will more than likely have to start medication within the next year. The Dilantin does terrible things to teeth so I pray that they would do another EEG first.

Tuesday we go for ear tubes and a sedated hearing test. Also just so you all know my husband and I (and our church) have been working extremely hard on redoing a house for our new pastor and his family who will be moving here next weekend. So if I have not been to your blog in two weeks that is why. We only had three weeks to get this house in tip top shape. Seems like I have not visited anyone in so long. Hope all is well with you.

EEG Done

Let's just say that was worse than the first one! The poor little peanut looked like a terrified wild animal trying to break free. It truly was heart breaking. If you could have only saw the fear in her eyes, I had to look away a couple of time before I lost it. The tech finally finished placing all the wires on Twink and she fell asleep. She was beat from all the crying and fighting. I'll tell you one thing, that baby can move that right arm purposefully at will. (The one side that was weakened from the stroke that she pays NO attention to)

The tech said she was able to get a very good reading. She also said because Twink had general sedation for her MRI before her last EEG that it could have messed with those results. So hopefully Monday we will get some answers and we won't have to do that again for awhile. The tech said the fact that she didn't have a seizure with all that stress she was under was a good thing. Stress, Illness, Drugs, Alcohol, Lack of Sleep and one more item can cause seizures! Good to know! So I will let you all know and hopefully we will get clearance to have surgery on the 19th for her tubes and sedated hearing test! :) Praying the tests are coming to an end.

On Hold Indefinitely

Twink's surgery is on hold indefinitely at this time! UGH!!! I know it is for the best but it really is frustrating. I talk to the neurologist this morning because I forgot to ask yesterday if she could have the surgery before the EEG. The answer is NO. She must wait until after the EEG which is August 9th, yes a Saturday. If it looks like she needs medication she'll have to be on that for at least 4-6 weeks for it to fully kick into her system. So it looks like we are looking at the middle of September! I just can't believe we have to wait that long. This test was suppose to be done back in FEBRUARY! I know the Lord knows best and I am trying to see the positives in this. Some times it is just SOOO hard. I'll keep you all posted.

On Going Tests!

Twink went to the neurologist late in the day yesterday. He told me he was surprised to see us so soon. We saw him less than a month ago. I was told by our family practice doctor that the neuro doctor was expecting her to have more seizures but did not know when.

The plan is to do another EEG and see what the out come of that is. He would then start her on a medication called Keppra. The doctor said there is little side effects, no blood draws and if it is the seizures he thinks she is having she'll have to be on the medication for quite some time. He said he does not believe they are febrile (just like every other doctor who cares for Twink) because with febrile one side of the body is not usually affected, it's usually both. With Twink's, hers start out as one sided. Also a 102.5 F is not considered a high enough fever to throw her body into a febrile seizure. Usually they are much higher.

So as you can see, her surgery was canceled! I have no idea when they will reschedule! I don't know the reason they canceled because I have not talked to anyone at the office. I sure hope to hear some thing today. I pray that it does not take another 6 wks to get it scheduled. I am frustrated!

Calgone Take Me Away!!!

Lia has not had any more fevers but is extremely cranky. She is super clingy and drooling much more than usual. The constant crying makes me cranky. Actually it makes me kind of crazy. The Count says she was like this after her last seizure but I can't remember. I'm sure she is still super tired and just not feeling herself. We will see the neurologist on Monday. So far I have not heard anything as to her surgery getting canceled but we will see come Monday. I'll keep you posted. Thanks for the prayers they have been needed.

Tonic-clonic seizure!!

That is what Twink had tonight. Of course she had a 102*5 temp but they (the docs) don't believe it is febrile. I knew some thing was not right with her and she started with the seizure soon after I noticed. I called 911 and the ambulance took both of us to the hospital. This seizure lasted longer than the last one. I think it was close to 2 hours. We are home and very tired. She has two appointments tomorrow, one with her ped. and the other with the neurologist. More than likely they will start her on medication. Please keep us in your prayers.

Dealing With Fevers, Again!

Here we are with high fevers again! We were up all night because this mama could not sleep with the thought that Twink could have a seizure in the middle of the night and need me. Daddy didn't get much sleep either because he was getting medicine for her all night.

I put her to bed about 8:30pm full of Motrin and went and checked on her at 10:30pm. She was hot to the touch. So I took her out of her crib and she slept with me, or should I say laid on me awake most of the night & early morning. We were alternating the Tylenol and Motrin and neither were bringing her fever down under 100.5*F. At one point about an hour and a half after the Motrin Lia spiked up to 102.4*F. When her little body starts to shake (rigors in nursing terms) it makes this mama really nervous. I can't stand the thought of another seizure and losing everything that she has gained in the last two weeks. Right now we are just praying. I'm sure if she was going to have another seizure due to a fever she would have had it by now so we are just watching her closely. I do believe that she is cutting a two year molar (reason for last fevers) but I thought they usually ran low grade fevers with teething! I don't think she knows what low grade is! LOL I'll keep you all posted.

Neurologist Appointment

I called the office last week because we had been waiting three months just for an appointment only to find out our paperwork was sitting in a pile waiting to be looked at! Grrrrrr I was then told the doctor that we were referred to only works three days a week and it will take some time to get into see her. I asked to be put on the cancellation list so they put Twink on. Well I received a call that they had TWO openings in one day! So of course I took one.

Guess what - It was not the doctor we were suppose to see! They have two doctors in the practice and we actually see the "other" doctor for my son. We really wanted to see the doctor we were suppose to see because I could understand her better. Don't get me wrong, I like this doctor. Sometimes it can be hard to understand him and with Twink's case being a little more complex I was nervous. It all worked out though. He told me that if Twink was to have another seizure that she would have to be put on medication. He did tell me that febrile seizures do NOT usually last 60+ minutes. So only time will tell and I do feel better now that I've talked to him. Praying it was a one time event.

All About Twink

Twink has now been with us for 5 months! It hardly seems possible. She has molded into our family like she has been with us forever. We see new growth with her every day. It may be little growth everyday but we'll take it and run with it. I was talking to my friend last week, telling her how I had a 6 month over and that baby was babbling the same sounds Twink was. I was pretty frustrated and down that day. She had to gently remind me that this baby did not live in an orphanage/foster care in China or have a stroke. Both of which I knew but still makes it hard to realize that your almost 2 1/2 yr old is 2 years behind! Twink is starting to make more sounds and is saying Mama, Dada, Baba and a few other things. She gets her point across by either pushing you or your hand to where/what she wants. LOL

We went to the audiologist yesterday and she was not very cooperative. I knew that would happen but we had to try. They were able to test the level of pressure in her ears and found that both ears are full of clear fluid. I was told they are NOT infected and antibiotic will not clear them up. We are going back on the 5th of June for the same test and if we have the same results we will look at having tubes placed. I was also told that while she was sedated that they could do all of the hearing tests they needed and would be able to determine if she had any hearing loss. It is pretty important to find out if she does have any loss on the side she had the stroke. If there is any hearing loss she may require a hearing aide on one side hopefully not both. The audiologist did tell me that doctors can not always see this fluid because it does not cause swelling or redness.

Twink received two shots last week and did great with them. She needs two more and we will be finished. They had wanted to do them all at once but I refused because of the possible fever and seizure issues. She had already had fevers last week so I did not want to have that fear again. She does seem to have some sort of dime size sore on her bum and I'm not sure what the cause is. It started out looking like a little pimple then a blister with a little puss. It broke open so I'm thinking we need to get it cultured.

Her sensory issues drive me crazy at times. I don't know if I have more patience or if she is getting better about things. She totally hates taking a bath and having her clothes changed. Brushing her teeth, you'd think I was using a rake on them or something. Brushing her hair is actually getting better. Lotions are usually soothing but to her must feel like there is sand mixed in it.

Twink has cut two of her two year molars. She still has two more to go. Eventually we need to see a dentist but I really dread that visit so I'm not pushing that. All of the other testing has come back great! Did you know all babies were born with a whole in their heart? It should close soon after birth. Twink's is closing and we should not have any problems. We are waiting for an appointment with neurologist and no longer see the stinky neurosurgeon! The hip x-ray came back great so for now we do not need to see a pediatric orthopedic! Our list of doctor and to do's is getting down there! Maybe there is an end in sight and we will just have our follow ups!

So hopefully after I get the house clean I'll make it over to your blogs today but I need to do some cleaning and get together my quilt squares! My friend is getting ready to make Twink's quilt!

Still Running Fevers

Twink is cutting two of her two year molars and I believe that is the problem! As long as we have Motrin and Tylenol in her she is a happy child. She has been pretty clingy and very whinny but was very pleasant this evening. I'm praying that this all comes to an end soon. We've been blessed so far but I feel like I'm living on the edge waiting for a seizure to happen.

On a good note, Dash won his baseball game last night! He actually hit the winning runs in and his coach gave him the game ball! Let's say my boy was on cloud nine.

Thanks for all the prayers for Twink! I'll keep everyone posted.

102.6*F

Well that is what we are dealing with here! Twink is running temps and I'm praying that she does not go into a seizure. She seems to spike extremely fast so I have to keep a close eye on her. Please keep her in your prayers!

Echo Tomorrow!

Twink goes in tomorrow for her echo cardiogram! It should prove to be interesting due to the fact that she can't stand doctors or to have her shirt off! I'm really not sure how they are going to get an image, I hope they have some tricks. If you could say a prayer for us i would be forever grateful! By the way, this test is one to rule out the cause of the stroke.

We are looking at getting her some extra help for the sensory issues she seems to have. We are having a difficult time when it comes to getting her dressed, bathed, hair and teethed brushed, and diapers changed. All these things we need to do. She completely melts down when we have to do any one of these items. It so hard for me because she really is almost stronger than me since my surgery. If any of you have been there done that and have any suggestions please e-mail me or post in the comments.

Praying we have no surprises tomorrow!

Next Step, Boston!

Well today went much better than the last scan we had done! The doctors were much more friendly as well as the nurses! Twink's main anesthesiologist was Chinese and asked which part of China she was from. I must say he made her a bit nervous but she did great. We were able to have her titers drawn for her immunizations while she was under sedation which was HUGE! I can't imagine holding her down and trying to stick her with needles. YIKES! We decided to have the titers drawn instead of doing all of her immunizations over. We had planned on doing all of them over but now with the threat of her having a seizure after each one, we've decided to see what she actually needs. Thank the Lord we were able to do it under sedation. It took them 30 minutes to just get the blood and then another 30 minutes to do the scan. I think we backed them up but I'm so glad that things went so much smoother this time. We were able to get all the scans on a disc so we will be able to take them to Boston with us. So, we leave next week with TONS of questions and hopefully we'll get plenty of answers. Thanks for all the prayers today! They helped us very much!

One Picture Says It ALL

Our house has the flu! Notice only five boxes of medication for six members of our family. Well our Dash had it last week and shared it with the rest of the family. He is finally back at school after missing 4 out 5 days last week. We didn't piece everything together last week or maybe we could have avoided some of this. We've manage to keep Twink's temp under 101 but it has been a struggle. Spitfire and Jewel have been running as high as 103.3 and I'm just starting to feel lousy. So hopefully the Tamaflu kicks in. The Count has fared well in this so far and is feeling great. Hopefully the Tamaflu works well for him also.

We leave for Boston in TWO WEEKS! I can hardly believe it! Where has the time gone? If Twink was going to have a seizure of any kind I'm glad she did it before we went to Boston that way can talk to the doctor there and see what he says. We will probably have to have her be followed by a regular neurologist for on going medical care. At least that is what her regular doctor said yesterday.

So hopefully this will be behind us in a couple of days and everyone will be better. Spring is almost here and I so can't wait! If I could open all of my windows to air out my house without getting frost bite I would. :)

We received many e-mails and phone calls over the past couple of days concerning Twink and what had happened Friday. I can't thank you enough for all of the support you all have given us. What a wonderful group of friends you all are! Thank you for your thoughts and prayers, they helped us through a pretty dark day. If I think about it too much it's too much to handle! Prayer helps a ton though. Thanks again everyone!

Unbelievably Scary Day

I had hoped to post how well things were going with Twink tonight but that change this morning. Two of our four children have not been feeling the best. They have had croup, fever, and yucky noses. Twink had it all the week before and seemed to do well this past week. She did great with all her therapy and even has a new splint she wears on her right hand.

Last night she felt rather warm so we gave her some Motrin and put her to bed. She woke up at 12am and I stayed up holding her for an hour because you could just tell she didn’t feel well. She did fine the rest of the night. This morning she woke as usual was a bit fussy but was playing in her crib. I will usually let her play in there for a little bit and then go in and get her. Well Dash decided he wanted to go in and get her without asking me. He brought her to me with a face full of boogies. She sat with me for a bit before she decided to vomit all over me. Not a lot the first time but enough for me to make phone calls to cancel lunch at my house. As I was on the phone she did it again only this time it was a good amount. I cleaned her all up and she didn’t even fuss so I let her be. I thought she was really tired and was falling asleep. Spitfire confirmed it looked like she was sleeping and then a few minutes later she told me she was awake. So I put her in a cradle position so I could actually see her face and something was seriously wrong. Her coloring was off. Now this is the first time she’s been sick and I just thought she was lethargic and progressively getting worse so I called my friend Carla whose daughter was very sick in China and asked what Princess looked like. As I’m looking at Twink my nurse instinct in me is saying her color is REALLY bad. Carla told me to look at how she was breathing so I laid her on the bed only to realize she wasn’t really. I got off the phone and called 911. As I’m watching Twink I can tell that she is not breathing and I am screaming at the 911 operator. I pick her up, bring her downstairs and lay her on the floor and the lady asks, “How many respiration does she have?” I watch her and the clock for fifteen seconds to realize she only has ONE! I then proceed to do what no parent should ever have to do to their child – rescue breathes. My 9 year old is running from neighbor to neighbor trying to find someone home and of course no one was. The ambulance was here within five minutes of my calling 911 and they were not even in my house 2 minutes. They put oxygen on her and took her right to the hospital. I was unable to go with them because of the children so I scrambled to find someone to watch them.

Thanks to two very good friends from church, one watched the kids and the other drove me with her tiny baby with her. So many things were going through my mind. She looked like she had passed when she was leaving my house. I was such a mess. I had no idea what had happened. I wasn’t sure if she had pneumonia, a stroke, something with cyst or a seizure. Praising God tonight, that it was only a febrile seizure. When I arrived at the hospital she was still in the middle of the seizure and as soon as the doctor saw me they told me what was going on. I didn’t have to stand there and wait for them to tell me anything. I ‘m so glad because I don’t think I could have waited much longer. They told me she was having a seizure and I thought it was due to the cyst. It’s not though. The seizure lasted about 60+ minutes and the doctor said that isn’t the norm for that type of seizure. He did say that she will be more inclined to have these types due to her medical history. We were able to leave the hospital about 2:15pm, about five hours after the whole incident. She is doing much better now besides being a bit drugged from the meds but that will get better soon. Her temp started to go back up about 4pm so she will be getting meds every four hours.

Thanks for all the prayers! Thanking the Lord for my son, for him bringing her to me when he did, for turning her over when I did, good doctors and nurses, paramedics and friends and family.